It was like a bad dream. Four days before Baylor University basketball star Isaiah Austin would hear his name called in the NBA draft in June, a routine physical revealed that he had a genetic disorder called Marfan syndrome. His NBA career was over, but as he noted, his life was not.
Victoria Everett knows Austin’s nightmare firsthand.
When the 27-year-old Philadelphian heard her baby boy diagnosed with Marfan syndrome earlier this year, she was not sure what to think. Neither she nor her family had any idea what the condition was.
When Josiah was only 33 weeks in the womb, he had already been diagnosed with an enlarged heart, but it wasn’t until after he was born on Jan. 10 that the true extent of his condition came into the grim light.